Research Volunteer Opportunities in Pediatric Clinical Research

Safe at School Study

Description: The purpose of this study is to learn more from parents about diabetes management in children and teens, especially care at school.  The study involves one visit in which parents will complete several surveys.  It will take about 40 minutes to complete these surveys.  Parents will receive free parking on the day of the visit and compensation for their time and effort.

Recruiting: PARENTS of children/teens with type 1 diabetes, ages 5-17, who attend public or private school and have had diabetes for 6 months or more.

Contact: Alan Schultz at 617-309-4510 or alan.schultz@joslin.harvard.edu or Roos Joosten at 617-309-4641 or roos.joosten@joslin.harvard.edu

(CHS #2012-06)

The T1D Exchange Type 1 Diabetes Network

Description: The Type 1 Diabetes (T1D) Exchange is a nationwide registry collecting information about children and adults with type 1 diabetes.  The purpose of the registry is to gather information about people with type 1 diabetes to help better understand the natural course of type 1 diabetes and the effectiveness of current treatments.  Participation in the registry involves completion of a questionnaire about medical and family history including diabetes diagnosis and treatment and laboratory test results  Annual updates of information are also part of the registry.

Recruiting: At the Joslin, individuals being followed in the Pediatric, Adolescent and Young Adult Section may be eligible to participate in this registry.

Contact: Camille Ratliff at (617) 309-4477 or camille.ratliff@joslin.harvard.edu

(CHS #2011-01)

The Tolerance Study

Description: This study is trying to help us better understand what causes type 1 diabetes to help find new ways to prevent or reverse the disease. The study is being done with researchers at Harvard Medical School and is funded by the Juvenile Diabetes Research Foundation.

The study visit includes the completion of questionnaires and a blood draw.

Recruiting: Individuals, ages 18 years and older, both with and without type 1 diabetes

Contact: Roxanne Phillips at 617-309-2481 or roxanne.phillips@joslin.harvard.edu

(CHS #02-15)

CGM improve study

Description: The purpose of this study is to find out how to make it easier for children and teens with type 1 diabetes to use continuous glucose monitors (CGM) over a long period of time.

The study involves 12 visits over a 24-month period with additional phone contacts between visits. The extra three visits occur during the first six months of the study: the rest of the visits will occur at routine clinic visits.

Families randomized to the intervention group will receive a family based behavioral intervention providing support and education regarding use of the CGM. Families in the usual care group will receive this information at the end of the study.

Youth in both groups will wear a CGM device throughout the study. Families will be asked to complete surveys at various intervals over the course of the study and labwork will be collected for the youth in the study.

Recruiting: Children and teens, ages 8-17 years, who have had type 1 diabetes for at least 1 year and who are receiving care at Joslin and their parents or legal guardians

Contact: Emily Fisher at 617-309-4644 or emily.fisher@joslin.harvard.edu

(CHS #2010-28)